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Showing posts from December, 2012

Update 2

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My daughter is two months old now, and although she is technically still doing well, over the past couple of weeks she has put on lots of odema (edema)– swelling due to fluid retention– and this has been causing her problems with her respiration, and she has been fast asleep the past three days, and possibly suffering from withdrawal now that she is off her morphine. All very hard to witness, and quite stressful. Hopefully 2013 will be a much better year.

Update

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My daughter is now six weeks old, and had her surgery on Monday. You can see the size of her cut/scar/wound. They shifted organs around, but couldn't put all of her stomach back where it is supposed to me; this may or may not cause any problems, we'll just have to wait and see.
She is stable, and doing well all things considered. Now we have to wait for her to recover, then work on her lungs getting better.